Tuesday, July 10, 2012

Living donors' stories

Narrative Inquiry in Bioethics (2, 1, Spring 2012) is devoted to a Narrative Symposium: Living Organ Donation

"As Elisa Gordon notes, the collection of stories represent the experiences of liver and kidney donors; donors whose organ was successfully and unsuccessfully transplanted into a recipient; related and unrelated donors; and donors who had overwhelmingly positive experiences, mixed experiences, and negative experiences. In these stories we read about a wide variety of motives for donation and concerns with the donation experience. We hope that the collection of personal narratives and commentaries by Drs. Dianne LaPointe Rudow and Paul Root Wolpe will lead to a better understanding of the current living donation process as well as improvements in that process for future donors."

Living Organ Donors’ Stories: (Unmet) Expectations about Informed Consent, Outcomes, and Care

pp. 1-6 | DOI: 10.1353/nib.2012.0001

Living Organ Donation

pp. 7-37 | DOI: 10.1353/nib.2012.0002

An Altruistic Living Donor’s Story

pp. 7-10 | DOI: 10.1353/nib.2012.0018

Surgery for the Soul

pp. 10-11 | DOI: 10.1353/nib.2012.0008

Kidney Donation Story

pp. 11-14 | DOI: 10.1353/nib.2012.0010

The Essence of Giving—A Transplant Story

pp. 14-17 | DOI: 10.1353/nib.2012.0012

Love—the Risk Worth Taking

pp. 17-19 | DOI: 10.1353/nib.2012.0014

My Donation Journey

pp. 19-21 | DOI: 10.1353/nib.2012.0016

A Life For A Life: My Gift To My Dad

pp. 21-24 | DOI: 10.1353/nib.2012.0017

Lessons Learned: The Realities of Living Organ Donation

pp. 24-26 | DOI: 10.1353/nib.2012.0007

Sarah’s List Exchange Experience

pp. 26-29 | DOI: 10.1353/nib.2012.0009

Accelerated Living Donation

pp. 29-31 | DOI: 10.1353/nib.2012.0011

Liver Donor Nightmare

pp. 31-34 | DOI: 10.1353/nib.2012.0013

Adrift After Donation

pp. 34-37 | DOI: 10.1353/nib.2012.0015

Personal Narratives: Living Organ Donation (Web Only Content)

Getting Our Child Off Dialysis

p. E1 | DOI: 10.1353/nib.2012.0019

A Living Donor’s Journey

pp. E2-E6 | DOI: 10.1353/nib.2012.0020

The Spare Kidney

pp. E6-E9 | DOI: 10.1353/nib.2012.0021

Living Donors are People Too

pp. E9-E11 | DOI: 10.1353/nib.2012.0022

Gifts and Obligations: The Living Donor as Storyteller

pp. 39-44 | DOI: 10.1353/nib.2012.0003

The Gift of Life—Walking by Faith

pp. E11-E14 | DOI: 10.1353/nib.2012.0023

Journey of an Altruistic, Non–designated Living Donor

pp. E14-E16 | DOI: 10.1353/nib.2012.0024

Experiences of the Live Organ Donor: Lessons Learned Pave the Future

pp. 45-54 | DOI: 10.1353/nib.2012.0004

1 comment:

Susan said...

Thank you for helping to spread the stories collected in Narrative Inquiry in Bioethics Vol 2 issue 1. These are really important stories and we appreciate the help in finding as many readers as possible.