European Collaboration on Kidney Exchange (program for meeting in Italy)

Note the various discussions of transnational kidney exchange...some of that will involve exchange within the EU, and some will involve dealing with the very diverse European views on extending kidney exchange to include pairs from countries that aren't able to pay for it, i.e. on global kidney exchange.

EUROPEAN NETWORK FOR COLLABORATION ON KIDNEY EXCHANGE PROGRAMMES

ENCKEP Meeting

August 30^th – Sept 1^st 2018

Hotel Palazzo Viceconte, Via S. Potito 7, Matera, Italy

DRAFT PROGRAMME (as of 15 June)

Thursday, August 30 2018

14:00 - 14:15    Welcome and introduction. David Manlove (UK)

14:15 - 15:15    Summary of activity on data collection and summarisation of best practices in KEPs

(ENCKEP Working group 1) Peter Biro (HU)

- Summary of Handbook 1: Kidney Exchange Practices in Europe.

- Summary of Handbook 2: Modelling and Optimisation in the European Kidney Exchange Programmes.

15:15- 15:45     Coffee-break

15:45 – 16:45    Round-table: Moderators: Lisa Burnapp (UK), Bernadette Haase (NL)

Consolidating the ENCKEP view on ethical and legal aspects of transnational KEPs

Discussants: Lucrezia Furian (IT), Frank Dor (UK), Franco Citterio (IT)

ü  inclusion of altruistic donors and managing reciprocity between participating countries

ü  inclusion of compatible pairs: what criteria should we use?

ü  deceased donors to initiate ‘chains’: should we and could we?

17:00 - 18:00 Inputs for ENCKEP

ü  Bridging clinical and OR aspects of KEPs. Paolo Ferrari (CH)

ü  Alternative approaches for transplant recipients with antibodies- A UK perspective. Nizam Mamode (UK)

Friday, August 31 2018

09:00 – 11:00 Working Group 1: Data collection and summarisation of best practices in KEPs

                        Moderator: Lisa Burnapp

ü  Developing an ethical and legal framework for transnational KEPs.

11:00 - 11:30    Coffee break

11:30 - 13:00    Working Group 2: National KEPs: models, optimisation methods and technology                          Part 1.             Moderator: Paolo Tubertini

ü  Findings of Handbook 1: proposing a standardised framework for designing KEPs based on identified optimality criteria and data models).

ü  Kick-off discussion on Handbook 2 (“Standards to describe and assess the structure and efficiency of existing and proposed KEPs”).

ü  Publications arising from the handbooks

13:00 - 14:00    Lunch

14:00 - 14:30    Working Group 2: National KEPs: models, optimisation methods and technology                         Part 2. Moderator: TBC

14:30 - 15:30    Working Group 3: Transnational KEPs and practical collaboration - Part 1. Moderator: Xenia Klimentova

What can we learn from cadaveric transnational programs?

o   Scandiatransplant experience. Tommy Andersson (SE)

o   Eurotransplant experience Jacob de Boer (NL)

·        Presentations on current pilot programs on transnational KEP

o   Scandiatransplant (if started)

o   Austria- Czech Republic. Tomas Marada (CZ)

15:30 - 16:00    Coffee break

16:00 - 17:00    Working Group 3: Transnational KEPs and practical collaboration. - Part 2. Moderator: Xenia Klimentova

Spain-Italy-Portugal. Maria Valentin (ES), Paola Di Ciaccio (IT), Catarina Bolotinha/Ana França (PT).

Discussion on further steps and developments.

17:00 - 17:30    Working Group 4: Dissemination of results

Moderator: Christian Jacquelinet

Discuss publication policy of Action deliverables, and dissemination tools such as handbooks, publications, software, conference presentations and via the Action website.

Saturday, September 1 2018

09:00 – 16:30 Training School for clinicians

09:00 - 09:30    Presentation of ENCKEP Action. David Manlove (UK)

09:30 - 11:00

l  European KEPs: Theory into Practice (Aline Hemke (NL)/Lisa Burnapp (UK)/Tomas Marada (CZ) /Karine Hadaya (CH)).  Focusing on practicalities and logistics

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11:00 - 11:30    Coffee break

11:30 - 12:30

l  National authorities: experience with using optimisation software.  Matthew Robb (UK), Catarina Bolotinha (PT), Maria Valentin (SP)

l  Italy, Portugal and Spain: collaboration on KEPs. Maria Valentin (ES), Catarina Bolotinha/Ana França (PT), Paola Di Ciaccio (IT)

12:30 - 14:00    Lunch

14:00 - 15:00    Perspectives from the USA

l  UNOS and KEPs in the USA. Ruthanne Leishman.

l  Market Failures. Itai Ashlagi.

15:00 - 15:30    Coffee break

15:30 - 16:30    Ethical and legal issues relating to transnational KEPs

                        Moderators: Lisa Burnapp (UK), Bernadette Haase (NL)

l  Introductory talk (title TBC) Martin Buijsen (NL)