Note the various discussions of transnational kidney exchange...some of that will involve exchange within the EU, and some will involve dealing with the very diverse European views on extending kidney exchange to include pairs from countries that aren't able to pay for it, i.e. on global kidney exchange.
EUROPEAN NETWORK FOR COLLABORATION ON KIDNEY EXCHANGE
PROGRAMMES
ENCKEP Meeting
August 30th – Sept 1st 2018
Hotel Palazzo Viceconte, Via S. Potito 7, Matera, Italy
Thursday, August 30 2018
14:00 - 14:15 Welcome and introduction. David
Manlove (UK)
14:15 - 15:15 Summary of activity on data collection
and summarisation of best practices in KEPs
(ENCKEP Working group 1) Peter Biro (HU)
- Summary of Handbook 1:
Kidney Exchange Practices in Europe.
- Summary of Handbook 2:
Modelling and Optimisation in the European Kidney Exchange Programmes.
15:15- 15:45 Coffee-break
15:45 –
16:45 Round-table: Moderators: Lisa Burnapp (UK), Bernadette Haase (NL)
Consolidating the ENCKEP view on ethical and legal aspects of transnational KEPs
Discussants:
Lucrezia Furian (IT),
Frank Dor (UK), Franco
Citterio (IT)
ü
inclusion of altruistic donors and managing reciprocity
between participating countries
ü
inclusion of compatible pairs: what criteria should we use?
ü deceased
donors to initiate ‘chains’: should we and could we?
17:00 -
18:00 Inputs for ENCKEP
ü Bridging
clinical and OR aspects of KEPs. Paolo Ferrari
(CH)
ü Alternative approaches for
transplant recipients with antibodies- A UK perspective. Nizam Mamode (UK)
Friday, August 31 2018
09:00 – 11:00 Working Group 1: Data collection and summarisation of best practices in
KEPs
Moderator:
Lisa Burnapp
ü Developing
an ethical and legal framework for transnational KEPs.
11:00 - 11:30 Coffee break
11:30 - 13:00 Working Group 2: National KEPs:
models, optimisation methods and technology Part 1. Moderator:
Paolo Tubertini
ü Findings
of Handbook 1: proposing a standardised framework for designing KEPs based on
identified optimality criteria and data models).
ü Kick-off
discussion on Handbook 2 (“Standards to describe and assess the structure and
efficiency of existing and proposed KEPs”).
ü Publications
arising from the handbooks
13:00 - 14:00 Lunch
14:00 - 14:30 Working Group 2: National KEPs:
models, optimisation methods and technology Part
2. Moderator: TBC
14:30 -
15:30 Working Group 3: Transnational KEPs and practical collaboration - Part
1. Moderator: Xenia Klimentova
What can we learn from cadaveric transnational programs?
o
Scandiatransplant experience. Tommy
Andersson (SE)
o Eurotransplant
experience Jacob de Boer (NL)
· Presentations on
current pilot programs on transnational KEP
o Scandiatransplant
(if started)
o Austria- Czech Republic. Tomas Marada (CZ)
15:30 - 16:00 Coffee break
16:00 -
17:00 Working Group 3: Transnational KEPs and practical collaboration. -
Part 2. Moderator: Xenia Klimentova
Spain-Italy-Portugal. Maria Valentin (ES), Paola Di Ciaccio (IT),
Catarina Bolotinha/Ana França (PT).
Discussion on further steps and developments.
17:00 - 17:30 Working Group 4: Dissemination of results
Moderator:
Christian Jacquelinet
Discuss publication
policy of Action deliverables, and dissemination tools such as handbooks,
publications, software, conference presentations and via the Action website.
Saturday, September 1 2018
09:00 –
16:30 Training School for clinicians
09:00 - 09:30 Presentation of ENCKEP Action. David Manlove (UK)
09:30 - 11:00
l
European KEPs: Theory into Practice (Aline Hemke (NL)/Lisa Burnapp (UK)/Tomas Marada (CZ) /Karine Hadaya
(CH)). Focusing on practicalities
and logistics
11:00 - 11:30 Coffee break
11:30 - 12:30
l National
authorities: experience with using optimisation software. Matthew
Robb (UK), Catarina Bolotinha (PT), Maria Valentin (SP)
l Italy,
Portugal and Spain: collaboration on KEPs. Maria
Valentin (ES), Catarina Bolotinha/Ana França
(PT), Paola Di Ciaccio (IT)
12:30 - 14:00 Lunch
14:00 - 15:00 Perspectives from the USA
l UNOS and KEPs in the USA. Ruthanne Leishman.
l Market
Failures. Itai Ashlagi.
15:00 - 15:30 Coffee break
15:30 - 16:30 Ethical and legal issues relating to transnational KEPs
Moderators:
Lisa Burnapp (UK), Bernadette Haase (NL)
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